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My HPV-Vaccine Injury Story – Chloe

Hello everyone,
I’m an 18-year-old girl who has a bundle of debilitating chronic conditions after being injured by the HPV vaccine. In October 2016 I died and came back to life due to the severity of my damaged ANS – I was resuscitated and put on life support until my internal organs recovered and until I could breathe without a ventilator.

The onset of symptoms noticeably came after my second out of three injections.

Before I got sick I did many things girls age 12 should do. I hiked, mountain biked, went to the park, rollerbladed to the shops, had social gatherings, went to the cinema, birthday parties, I had friends.

I was a dancer. And I think that speaks for itself. I had an artistic, busy and athletic lifestyle. I danced 6 days a week at the studio, at school and I also stretched and worked on technique religiously at home. I loved to go to after-school sport and dance clubs every night. I loved the fact that I had a regime and something to look forward to every day. I was on the right road to getting A’s at GCSE. I lived life to the max, life has always been important to me, more so now I’m isolated from the real world. I danced to feel free, in control and to have the time of my life. I used my body to create a piece of art.

I now use the memories I created as a coping mechanism and a tool to guide me and help me deal with a life full of disappointment, hardship, illness and pain.

I wanted to have a dance career; my heart bleeds with the torture knowing I may never walk again, let alone dance again.

I love art and fashion so I went into fashion design but my conditions took a downward spiral, so that I didn’t even get a quarter of the way through the course.

Everyday is a battle against the never ending symptoms – against pain, random and exhausting fits, mast cell reactions, the agony when meds, feed and water is pushed down my tube. Then there’s the war with the invisible aspects people don’t see: the nausea, migraines, vision problems, light and noise sensitivity, the multiple injection wounds from injecting daily to reduce blood clots. You don’t see the paralysed stomach or delayed motility of my GI tract, the raw inflammation and ulceration in my colon, the over-active nerve endings, blocked signals in my brain and spinal cord, and of course the intense chronic pain that you don’t always see in public because of the ‘stay brave and cry later face’. It’s all hidden until you tell the world your story.

The adverse reaction to the vaccine and the conditions I have developed over the years has had a huge impact on my life. Now my life is complicated, and that’s not because I’m in a complex relationship like others my age, but because my future is uncertain. Tomorrow is another day but I never know what tomorrow or even the next hour will bring; I can’t predict the future and I can’t plan ahead. I don’t know if I’ll be able to have kids as I know many 18-year-olds who are infertile thanks to Cervarix or Gardasil.

I may have a broken body which persistently disobeys me, however I am lucky enough to be a mentally strong individual who’s managed to build up her own coping mechanisms and psychological techniques despite negligence and terrible past experiences. Despite hardship I find happiness. Despite pain I find inner peace. Mindfulness may help others in my situation, and yes it will keep the demons of depression and anxious thoughts away. However, no amount of mindfulness and positivity will change the immense pain I endure and magic the mobility and loss of sensation back into my once healthy, sporty, dancing body of mine.

I guarantee my future won’t be how I planned it, but it will be full of determination and dedication to continue raising much needed awareness.

“A successful person is a person that can build a firm foundation with the bricks that life has thrown at them” ~Chloe

2015: I’m feeling gooood☺ can’t believe I’m finally ‘walking’ after 3 months of hard work, dedication and meditation!

Edit: 4/7/2017: “It took 3 months to get to this stage – dragging my feet along with support of a frame [2 years ago] after being bed bound for 7 months. It didn’t last long; it only lasted 3 weeks and those weeks consisted of falling to the floor, fainting and paralysis episodes. I was still bed bound by approximately 95%, but that 5% felt truly amazing (even though I could only shuffle and reach a meter at maximum!)

I have been completely bedridden for 34 months. That’s 3 years at the end of August.?

DISCLAIMER: This is NOT me now… I’m much much sicker. But “Every sick day is a day closer to wellness”

Unfortunately I’ve had to open a go fund me account to fund various medical costs and hopefully eventually treatment! Please share widely: https://www.gofundme.com/HelpChloeLiveAgain

SOURCE:

– Chloe’s Chronicle My of Chronic Illness – My HPV Vaccine Injury Journey.
https://www.facebook.com/ChloesVaccineInjuryJourney/posts/740919352724290:0

Video: https://www.facebook.com/ChloesVaccineInjuryJourney/videos/825392557610302/

Update 14 July 2017:

It doesn’t look it, but my stomach is so swollen I had to take my belly bar out: I feel naked?

Today I’ve FINALLY finished a 10 page letter with 5 pages of treatment option research for my new neurologist & a copy for my GP. It’s taken 4 months!! You have no idea how relieved I am. I’ve accomplished something that I thought I’d never have the time or energy to do (with a little help of nobody wanting to take on my case!) but still… There’s been so many seizures, tears, so much pain, full body paralysis episodes, stroke like symptoms, screaming from the pressure in my head, fainting and even eye pressure which caused temporary blindness in my left eye.

I literally want to shout “Thank F*ck” from the rooftops. I can’t believe I managed to do this in the dire and often critical state I’ve been in. I’m in shock. I wish it was time to relax. But I now unfortunately have another important letter to finish (after a week of pure selfish ‘me’ time) for the complaint service above PALS, my local MP, the U.K. Health Minister and The European Minister of Health to kick their butts into gear to provide me (and others) with a basic level of healthcare; i.e. adequate funding- enough self catheters to get me through a month, syringes, FREE bile bags, basic understanding of chronic conditions in A&E departments, naming and shaming those who have put my life at risk by not pursuing basic protocols (such as the sepsis protocol) and most importantly, basic information needs to be shared or provided when administering vaccines. Allowing people to have a *informed* decision [which I never had] parents should know the pros and cons before they go ahead. The facts are there, but the training is not. Word by word my voice will be heard?✨

SOURCE

Update 1 Aug 2017

Hello everyone.✨

Sorry for the lack of page posts, I’m not doing too great. I am still recovering from my latest admission to hospital which was one hell of a physically and mentally challenging few days. Plus, while under the care of the hospital my central line was tugged by a man walking out the door with my IV fluid rucksack (accidentally: he thought it belonged to the ED.) It was still attached to me. I couldn’t warn him because I couldn’t talk.? Luckily it is tunnelled (grown into my soft tissue) so it’s difficult to pull out. Unfortunately, the force of it has coiled the top of the line where it’s inserted with a small incision at the bottom of my neck and threaded into a large artery. It’s been very sensitive and painful, but more uncomfortable than anything. I’m used to not knowing it’s there, but now I have weird blood gushing, sharp pains and a small lump on my neck. It still works, but it’s causing me a lot of aggro. I have a feeling there might be a tiny fracture which means I will have to have it replaced. They discharged me without investigations, but to be honest it’s been reported and can be managed at home for the time being as there’s no major alarm bells ringing… yet!

In a shorter explanation than planned, following on from my previous health update:

As suspected, doctors believe that my speech is severely impaired because not a lot of oxygen (or blood) is getting to my brain for multiple reasons. The main culprits being POTS, Mast Cell Activation, and my Seizures- this is essentially “the best” and easiest outcome….
but I’m chronically complex??and things don’t go straight forward for me.

While I was in hospital I had high flow Oxygen on constantly throughout the night and when I woke I was able to see the numbers on the clock easily and it generally helped my body hugely- even my blood pressure of 61/44 regulated to a “normal” 85-90 systolic!!

Thankfully I now have oxygen at home and my 150+ seizures in 36 hours have decreased massively; however oxygen unfortunately isn’t the quick fix I first thought. I might be having less seizures but my Mast Cell attacks have doubled if not tripled in severity to the point where my body simply can’t cope with 8 lots of my necessary meds a day. For less trauma and to reduce physical stress levels (cortisol) in my body I’ve had to narrow it down dramatically to 2 lots of torturous meditation administrations a day, which is an unwanted shock to the system. Oxygen isn’t as effective now, but I no doubt wouldn’t be here without it; that’s how bad this situation can get*. The above partially answers one of my Facebook page’s most FAQ’s: “Why can’t you come off all pharmaceutical medications?” In the simplest way possible, I’d be dead without them. They are keeping me alive in various different ways.

As you can imagine this has taken a massive toll on my body (and worsened my neighbouring conditions) but to go through 8 lots of major histamine releases plus non medication related MCAD attacks daily is way too dangerous. My antihistamines aren’t working well. I have no other “rescue” meds, therefore I have no other choice.

Mast Cell Activation and generally being ‘allergic to life’ on top of seizures, POTS, ME, Fibromyalgia, Dysphasia, Gastroparesis, Eosinophilic colitis, subluxations + more is beyond challenging and extremely ugly.

Do you know what it feels like to be unexpectedly pulled under by what looks like a harmless wave on the beach?

This is what MCAD feels like.

During every Mast Cell Attack it literally feels like I’m drowning, just without being surrounded by water. It feels like I’m being strangled, just without the hand rapped
around my throat. It’s a feeling of torturous suffocation, just without the pillow being held over your head. MCAD is (not at all the same, but similar to) domestic violence. There’s no control over it. You can’t see it coming. There’s no way out. The only thing which differs is the fact that my body attacks itself. It’s evil.

My heart is going berserk and my pain is on a crazy level because I’m not having 4 doses of my beta blockers, I’m only having half and only 2 out of 8 doses of morphine a day. Here is a answer to the second most FAQ’s “Have you ever tried weed?” I am having lots of CBD oil [little but often] to fill in the gaps, but I’m even beginning to react to cannabis too (which is the most natural medicine ever!!) As for Reiki, I haven’t had reiki for a long time because my lovely reiki master Nina has been really poorly and in hospital herself.?

I’ve honestly never endured so much constant widespread pain in my entire chronically ill life [for me to say this, it must be bad.] I guess I will have to accept this as my ‘new level of normal’ for the time being. Being just ‘normal’ is highly overrated anyway.

*{I’ve luckily managed to get an appointment with a top immunologist next week so there’s a glimmer of hope for better management and a concrete diagnosis. If this consultant can’t do anything to help, nobody can.}

The Negatives:
WAY TOO MANY.

The Positives:
-I don’t have to buy dodgy oxygen canisters online.
-I am no longer majorly oxygen deprived.
-I’m no longer blind in one eye.
-I have colour in my face.
-I can talk (the tiniest bit!) But still not without a seizure.
-I’m going to get extensive Allergy testing and have an Immunology consultation which I won’t have to wait months for.
-I’m stable in a negativity and hospital free environment.
-I will hopefully be staying at home for my birthday (unless there’s a cancellation to see the immunologist.)
-I can’t breathe comfortably, but I’m alive.

~Chloe

– Help Chloe Live Again Fundraiser
https://www.gofundme.com/HelpChloeLiveAgain?viewupdates=1&rcid=r01-150264342232-3949c55dea9a4439&utm_source=internal&utm_medium=email&utm_content=cta_button&utm_campaign=upd_n